NORD: Chronic Granulomatous Disease (CGD) (Medical Assistance): Waitlist

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About

The NORD: Chronic Granulomatous Disease (CGD) Medical Assistance program offers crucial support for patients with CGD needing medical assistance. With coverage for important drug products like Rayos, Actimmune, Cyclophosphamide, and Posaconazole, the program ensures rapid access to necessary healthcare services. The NORD CGD program is designed to assist eligible patients, focusing on facilitating quick approvals and a straightforward application process.

Insurance requirements: Underinsured, Uninsured

Enrollment Forms

Enrollment Form

Program Requirements

•Valid only for residents in the US and Puerto Rico

•Enrollment Required: Yes

•Coverage Required: No

•Needs Based: Yes

•Activation Required: No

Program Details

•Please note the following:

•1. Program offers medical assistance only

•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program

•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue

•Patients may apply online, call (8552015096) or email (CGDassist@rarediseases.org) program to enroll

•Awards are made for a calendar year, and patients may reapply for subsequent years

•NORD is able to offer same day approval for programs

•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability

•Fax number for program is 2034868462

Enrollment Forms

Enrollment Form