NORD: Organic Acidemia (Copay)

Funded

About

The NORD: Organic Acidemia (Copay) program provides essential financial support for patients requiring medications such as Ravicti, Carbaglu, and Buphenyl. The program aids with out-of-pocket medical expenses, ensuring access to prescribed, FDA-approved treatments. NORD's streamlined process includes same-day approval and is dedicated to assisting participants in managing their healthcare costs effectively.

Insurance requirements: Commercially insured, Medicare / Medicaid

Enrollment Forms

Enrollment Form

Program Requirements

•Valid only for residents in the US and Puerto Rico

•Enrollment Required: Yes

•Coverage Required: No

•Needs Based: Yes

•Activation Required: No

Program Details

•Please note the following:

•1. Program offers medical expense assistance with outofpocket costs to purchase physician prescribed, FDA approved medications, medical formulas, supplements and vitamins

•2. The program may assist with copay costs associated with the above, or with outofpocket expenses that are not covered by health insurance

•3. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program

•4. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue

•Patients may apply online, call (2032858288) or email (OA@rarediseases.org) program to enroll

•Awards are made for a calendar year, and patients may reapply for subsequent years

•NORD is able to offer same day approval for programs

•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability

•Fax number for program is 2037024225

Enrollment Forms

Enrollment Form