NORD: Phenylketonuria (PKU) (Premium & Copay)

Funded
About
The NORD: Phenylketonuria (PKU) (Premium & Copay) program provides essential financial assistance for patients requiring treatment with drugs such as Aldurazyme, Kuvan, Cholbam, Elaprase, Orfadin, Palynziq, Javygtor, and Sephience. This program is designed to help with insurance copays and premiums, ensuring that eligible patients can access necessary treatments without financial burden. By offering same-day approval and a streamlined application process, the NORD: Phenylketonuria (PKU) program is committed to supporting patients with phenylketonuria in managing their healthcare costs effectively.
Insurance requirements: Commercially insured, Medicare / Medicaid
Enrollment Forms
Enrollment Form
Program Requirements
Valid only for residents in the US and Puerto Rico
Enrollment Required: Yes
Coverage Required: No
Needs Based: Yes
Activation Required: No
Program Details
Please note the following:
1. Program offers assistance with insurance copays and premiums only
2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
Patients can apply online, call (8556280646) or email (pku@rarediseases.org) program to enroll
Awards are made for a calendar year, and patients may reapply for subsequent years
NORD is able to offer same day approval for programs
Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
Fax number for program is 2037982964
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