NORD: Fabry Disease (Medical Assistance): Waitlist

Not Funded
About
The NORD: Fabry Disease (Medical Assistance): Waitlist program provides vital support for individuals diagnosed with Fabry Disease requiring Fabrazyme, Galafold, or Elfabrio. This program ensures that eligible patients, who are uninsured or underinsured, receive the help they need through streamlined application processes and financial evaluations. With same-day approval possibilities and renewed annual support, NORD is committed to aiding those affected by Fabry Disease.
Insurance requirements: Underinsured, Uninsured
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•2. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients may apply online, call (2034332455) or email (Fabry@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 2036432020