NORD: Duchenne Muscular Dystrophy (Medical Assistance)

Funded
About
The NORD: Duchenne Muscular Dystrophy (Medical Assistance) program offers vital support to patients diagnosed with Duchenne Muscular Dystrophy by providing medical assistance and access to essential drug products such as Rayos, Exondys 51, Emflaza, and more. With quick approval processes, insurance support, and multiple enrollment options, the NORD: Duchenne Muscular Dystrophy program is designed to reduce treatment barriers and improve patient outcomes.
Insurance requirements: Underinsured, Uninsured
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Program offers medical assistance only
•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients may apply online, call (8662188172) or email (DMD@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 2032639597