NORD: Duchenne Muscular Dystrophy (Premium & Copay)

Funded
About
The NORD: Duchenne Muscular Dystrophy (Premium & Copay) program provides invaluable support for patients diagnosed with Duchenne Muscular Dystrophy. This program assists patients with insurance copays and premiums related to the drugs Rayos, Exondys 51, Emflaza, Vyondys 53, Viltepso, Amondys 45, Elevidys, Agamree, and Duvyzat. NORD: Duchenne Muscular Dystrophy (Premium & Copay) ensures that eligible patients gain access to essential medications through financial evaluations and insurance support, making it a critical resource for managing this condition.
Insurance requirements: Commercially insured, Medicare / Medicaid
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Program offers assistance with insurance copays and premiums only
•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients may apply online, call (8662188172) or email (DMD@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 2032639597