NORD: Fabry Disease (Medical Assistance)

Funded

About

The NORD: Fabry Disease (Medical Assistance) program offers valuable support to patients diagnosed with Fabry Disease who require drug treatment with Fabrazyme, Galafold, or Elfabrio. This program is essential for eligible patients, particularly those who are uninsured or underinsured, as it provides access to necessary medications while considering financial guidelines. Participation in the program ensures that patients undergo a financial evaluation and benefit from the potential for same-day approval, promoting timely assistance.

Insurance requirements: Underinsured, Uninsured

Enrollment Forms

Enrollment Form

Program Requirements

•Valid only for residents in the US and Puerto Rico

•Enrollment Required: Yes

•Coverage Required: No

•Needs Based: Yes

•Activation Required: No

Program Details

•Please note the following:

•1. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program

•2. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue

•Patients may apply online, call (2034332455) or email (Fabry@rarediseases.org) program to enroll

•Awards are made for a calendar year, and patients may reapply for subsequent years

•NORD is able to offer same day approval for programs

•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability

•Fax number for program is 2036432020

Enrollment Forms

Enrollment Form