NORD: Periodic Paralysis (Medical Assistance)

Funded

About

The NORD: Periodic Paralysis (Medical Assistance) program offers essential medical assistance for patients diagnosed with Periodic Paralysis, focusing on the drug products Keveyis and Ormalvi. Designed to support U.S. citizens or residents who are uninsured or underinsured, this program ensures timely access to necessary treatment. NORD facilitates easy online applications, same-day approval, and annual awards, prioritizing efficient problem resolution and patient support.

Insurance requirements: Underinsured, Uninsured

Enrollment Forms

Enrollment Form

Program Requirements

•Valid only for residents in the US and Puerto Rico

•Enrollment Required: Yes

•Coverage Required: No

•Needs Based: Yes

•Activation Required: No

Program Details

•Please note the following:

•1. Program offers medical assistance only

•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program

•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue

•Patients can apply online, call (8772917756) or email (periodicparalysis@rarediseases.org) program to enroll

•Awards are made for a calendar year, and patients may reapply for subsequent years

•NORD is able to offer same day approval for programs

•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability

•Fax number for program is 2035860138

Enrollment Forms

Enrollment Form