NORD: Periodic Paralysis (Premium & Copay)

Funded
About
The NORD: Periodic Paralysis (Premium & Copay) program provides essential financial assistance for individuals diagnosed with Periodic Paralysis, focusing on the drugs Keveyis and Ormalvi. This invaluable program helps cover insurance copays and premiums, ensuring that patients receive the treatment they need without financial burden. By offering same-day approvals and the ability to reapply annually, the NORD: Periodic Paralysis program is dedicated to making healthcare accessible and efficient for those affected by this condition.
Insurance requirements: Commercially insured, Medicare / Medicaid
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Program offers assistance with insurance copays and premiums only
•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients can apply online, call (8772917756) or email (periodicparalysis@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 2035860138