PAN: Pompe Disease (Premium Assistance)

Funded
About
The PAN: Pompe Disease (Premium Assistance) program provides valuable financial support for patients receiving treatment for Pompe Disease. Benefiting from the drug products Lumizyme, Nexviazyme, Opfolda, Pombiliti, and others, this program ensures coverage through premium assistance, helping patients manage medication costs effectively. Participants must meet specific eligibility criteria, including having appropriate health insurance and income levels, but the program offers fast eligibility determination and comprehensive coverage options.
Insurance requirements: Commercially insured, Medicare / Medicaid
Enrollment Forms
Enrollment Form
Benefits
•$4800 annual maximum benefit
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. This fund may cover offlabel drugs
•2. This fund is for premium assistance only
•Patients can either call (18663167263) or apply through selfservice patient portal
•Provided patient completes application on self service portal or over the phone, eligibility determination takes less than one minute
•Portal/representative will provide enrollment dates, the patient's PAN I.D. number and the available grant balance, allowing for medications to be dispensed
•Patients will also receive approval letter and plastic pharmacy card within one week (provider will also receive letter)
•Assistance begins on approval date and continues for 12 months
•During initial eligibility period, eligible expenses incurred up to 90 days prior to approval date may also be submitted for reimbursement
•All eligible expenses must be submitted within 120 days of the eligibility end date
•Payment can be made to the patient, physician, pharmacy or health care provider
•Patients are eligible for renewal at the end of their eligibility period if funds are available
•Foundation will send a renewal application automatically if the program is accepting renewal patients
•Patient may apply for a second grant during their eligibility period subject to availability of funding
•Diagnosis Codes: ICD10: E74.02