NORD: Mucopolysaccharidosis Type VI (MPS VI) (Medical Assistance)

Funded
About
The NORD: Mucopolysaccharidosis Type VI (MPS VI) Medical Assistance program provides essential aid for patients diagnosed with Mucopolysaccharidosis (MPS VI), specifically focusing on drugs like Rayos and Naglazyme. NORD: MPS VI is dedicated to helping uninsured or underinsured patients in the United States by offering same-day approvals and efficient problem resolution through their specialty pharmacy network and helpful case managers. This program ensures that patients receive the necessary medical assistance by meeting eligibility and income criteria, fostering easier access to treatments like Rayos and Naglazyme.
Insurance requirements: Underinsured, Uninsured
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Program offers medical assistance only
•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients can apply online, call (8777988716) or email (mpsvi@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 2033493203