NORD: Mucopolysaccharidosis Type VI (MPS VI) (Premium & Copay)

Funded

About

The NORD: Mucopolysaccharidosis Type VI (MPS VI) (Premium & Copay) program provides crucial financial assistance for patients diagnosed with MPS VI, offering support for insurance copays and premiums related to treatment with Rayos and Naglazyme. Eligibility is straightforward for U.S. residents with existing insurance, ensuring broad access to necessary support. NORD streamlines the application process with online, phone, or email options, providing quick turnaround times for approval to facilitate timely access to care.

Insurance requirements: Commercially insured, Medicare / Medicaid

Enrollment Forms

Enrollment Form

Program Requirements

•Valid only for residents in the US and Puerto Rico

•Enrollment Required: Yes

•Coverage Required: No

•Needs Based: Yes

•Activation Required: No

Program Details

•Please note the following:

•1. Program offers assistance with insurance copays and premiums only

•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program

•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue

•Patients can apply online, call (8777988716) or email (mpsvi@rarediseases.org) program to enroll

•Awards are made for a calendar year, and patients may reapply for subsequent years

•NORD is able to offer same day approval for programs

•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability

•Fax number for program is 2033493203

Enrollment Forms

Enrollment Form