NORD: Morquio A Syndrome (Medical Assistance)
Funded
About
The NORD: Morquio A Syndrome (Medical Assistance) program offers vital support for individuals diagnosed with Morquio A Syndrome or MPS-IV-A. Through assistance with medications such as Rayos and Vimizim, the program provides essential aid to uninsured or underinsured US citizens or residents. NORD: Morquio A Syndrome (Medical Assistance) allows patients to apply for medical assistance through an online portal, with potential for same-day approval, ensuring rapid access to care when most needed. The program is a crucial resource for those requiring medical assistance to manage their condition effectively.
Insurance requirements: Underinsured, Uninsured
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Program offers medical assistance only
•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients can apply online, call (8446752354) or email (MPSIVA@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 12033493200
Enrollment Forms
Enrollment Form