NORD: Neurofibromatosis Type 1 (NF1) (Premium & Copay)

Funded

About

The NORD: Neurofibromatosis Type 1 (NF1) Premium & Copay program provides essential financial support for patients diagnosed with Neurofibromatosis Type 1. The program aids in covering insurance premiums, deductibles, copayments, and coinsurance costs. With same-day approval and an annual reapplication process, the NF1 program offers coverage for a range of medical expenses including medications like Mekinist, Somavert, BilCNU, and Koselugo, among others.

Insurance requirements: Commercially insured, Medicare / Medicaid

Enrollment Forms

Enrollment Form

Program Requirements

•Valid only for residents in the US and Puerto Rico

•Enrollment Required: Yes

•Coverage Required: No

•Needs Based: Yes

•Activation Required: No

Program Details

•Please note the following:

•1. Program offers assistance with insurance copays and premiums only

•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program

•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue

•The NF1 Premium & Copay Program assists eligible individuals who have health insurance with funding to cover health insurance premiums, deductibles, copayments and coinsurance costs associated with the care of NF1, such as:

•• medical visits

•• laboratory & diagnostic testing

•• medications and other specific NF1 related medical expenses

•• physician prescribed supportive therapies, such as physical, occupational therapies or speech therapy

•• durable medical equipment

•Patients can apply online, call 2032639795 or email NF1@rarediseases.org program to enroll

•Awards are made for a calendar year, and patients may reapply for subsequent years

•NORD is able to offer same day approval for programs

•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability

•Fax number for program is 2034053021

Enrollment Forms

Enrollment Form