NORD: Narcolepsy (Medical Assistance)

Funded
About
The NORD: Narcolepsy (Medical Assistance) program offers essential support to patients diagnosed with Narcolepsy, providing access to medications like Xyrem, Sunosi, Wakix, Xywav, and Lumryz. This program is designed specifically for those who are uninsured or underinsured, ensuring that even the most vulnerable can receive necessary medical assistance. While specific drug coverage details require direct inquiry for verification, the NORD: Narcolepsy (Medical Assistance) program facilitates quick and efficient assistance through their experienced specialty pharmacy representatives and case managers. With same day approvals often possible, this program is a vital resource for narcolepsy patients seeking comprehensive medical support.
Insurance requirements: Underinsured, Uninsured
Enrollment Forms
Enrollment Form
Program Requirements
•Valid only for residents in the US and Puerto Rico
•Enrollment Required: Yes
•Coverage Required: No
•Needs Based: Yes
•Activation Required: No
Program Details
•Please note the following:
•1. Program offers medical assistance only
•2. Specific drug coverage is not indicated on program website; drug coverage must be verified by calling program
•3. Specialty Pharmacy representatives/case managers can send new referrals through the referral portal (https://rareaccess.org/#/login). Representatives must be preregistered by sending a request to RareAccess@rarediseases.org. Representatives can also email the program email address. To make the problem resolution quicker and more efficient please do not send messages to individual emails. If the matter is URGENT, please reach out to SP account manager for NORD to escalate the issue
•Patients can apply online, call (8552025826) or email (narcolepsy@rarediseases.org) program to enroll
•Awards are made for a calendar year, and patients may reapply for subsequent years
•NORD is able to offer same day approval for programs
•Patients must undergo a financial evaluation of need, and provide HIPPA authorization and accept a waiver of liability
•Fax number for program is 2034058795